Allyn's Journey (HLHS)

Community

This page is dedicated to our daughter, Allyn. She was diagnosed with hypoplastic left heart syndrome on November 4, 2011. This is a documentation/celebration of our family's journey! Thank you!


Hello,

On November 4th, we were informed that Allyn has a severe heart condition. The condition is called Hypoplastic Left Heart Syndrome (HLHS). At 4-6 weeks gestation, the left side of her heart did not develop properly. Although the condition is not fatal, it is very complicated. She will need to undergo a series of three open-heart surgeries. One at two weeks of age, another at 6 months of age and the final at 3 years of age.

We are a family full of faith and we believe that God has chosen us to care for this precious, little soul for a life-changing purpose. Although the news is still very fresh and we are learning more about the condition everyday, we are still trying to cope with the initial shock. We ask for your abundant prayers above all else and pray that the duration of the pregnancy goes smoothly (due Jan. 30th).

I will continue to keep you all informed on our progress/appts:)

If I forgot to tag anyone, please spread the word as we need all the prayers we can get:) Thank you in advance for your prayers!

2:43
Just listen
1 year ago